Goodbye BlogHarbor
October 30, 2011
I stated a while back that there would be a change taking place with WipeOutMS.com due to the host BlogHarbor shutting down. Well that time has come and so later today if you try to access WipeOutMS.com you may get an error message. No don’t delete the bookmark or anything as the DNS is being changed to the new host and website. If I’ve done everything right the domain should find its new path in a few hours.
Until then you can get to the new website at WipeOutMS.org.
The website is not complete but I hope to have it completed, if a website is ever done, in a few weeks.
Make sure you try the new Halloween puzzle on the “News and More” page.
Suggestions and comments are welcome on Twitter, @WipeOutMS
Benefit to support The MS Bridge » Local News » The Edmond Sun
October 15, 2011
Another group that helped in the creation of the “Multiple Sclerosis Center of Excellence” is the MS Bridge. They are having this fundraiser to help support Oklahomans with MS.
According to their website MS Bridge, among the functions they provide is financial support to those that can’t cover the cost of medications, even if they have insurance. I agree the cost can be staggering for some with multiple sclerosis. While there are several medications that slow the progression of the disease they cost $3500 or more per month without insurance. The new oral medication costs $48,000 per year. A quote from their website is a real life example:
“Each month I spend on average $2300 out of pocket on medications to control my symptoms. Insurance helps, but even with assistance the cost is overwhelming. The drugs and other treatments have stalled my disease and I can’t imagine my life without them. This is the only way I can function.” Lori Evans, MS Patient, MS Center of Excellence.
“The MS Bridge will have a benefit concert, Musical Moments, at 6 p.m. Oct. 21 at the Gaillardia Golf and Country Club. The event includes dinner and a special performance by jazz pianist and Steinway artist Joe Augustine.
Other performers for the evening are local physicians and pianists, Dr. Gilbert Haas, Dr. J. Spencer Thompson and the Canterbury Choral Society Octet.
The event will benefit The MS Bridge, an Oklahoma based nonprofit organization that provides assistance to Oklahomans with multiple sclerosis. MS Bridge also supports research at the Oklahoma Medical Research Foundation’s Multiple Sclerosis Center of Excellence.”
via Benefit to support The MS Bridge » Local News » The Edmond Sun.
Matthew Vaughn Snags Superior « Spinoff Online – TV, Film and Entertainment News Daily
October 5, 2011
Looks like we now have a superhero, another way to bring awareness to our cause.
“I wanted to write about a superhero with a disability and I chose MS because it’s something that touched one of my school-friends growing up,” Millar said in a statement. “I’m acutely aware of the unexpected way the disease can strike anyone and the enormous difficulties it can cause. Superhero stories are essentially wish-fulfillment fantasies and nothing seemed more powerful to me than a little boy with a magic wish not only wanting to WALK again, but to FLY.”
via Matthew Vaughn Snags Superior « Spinoff Online – TV, Film and Entertainment News Daily.
Congratulations Patrick and wow!
“The challenge: 50 marathons in 50 states before turning 50. That gave Patrick Finney less than four years to complete what seemed an unthinkable task.
Intrigued, the former Omahan researched a host of marathon courses across the U.S., their elevation levels, and coordinated the dates. He created an Excel spreadsheet to organize the undertaking. And then he did it. In less than two years.
“Once I made up my mind to go for it, I did, no hesitation,” he said.
What makes the feat more impressive is that Finney, 48, has multiple sclerosis, a debilitating disease that short-circuits communication between the brain and the body.
“It’s pretty unbelieveable,” said Dr. Pam Santamaria, a neurologist at the Nebraska Medical Center. “It should send a message of encouragement to other patients with MS.”
via Runner with multiple sclerosis completes 50th marathon – LivewellNebraska.com.
Riding strong: MS patient won’t give up | NewsOK.com
September 17, 2011
In the news Lynn Brickman is biking the Mother Road, Route 66 for Oklahoma’s Bike MS. I’ll be at the State Capitol for the finish line tomorrow.
